Hello,

I'm Miran Duman. One month after I was born, my family noticed that my movements had decreased and had a genetic test. We waited for my result to come out and I was diagnosed with Spinal Muscular Atrophy Type 1. SMA disease is a disease caused by the absence of SMN-1 and SMN-2 genes that enable muscles to move in the human body. Due to this severe illness I had with my young age, my movements in my arms and legs decreased almost to no avail, and due to respiratory distress, I was now connected to a mechanical ventilator. After my illness, which was a devastating illness for my family, I was now having difficulty breathing, adding to their sadness. My family has great hope that I need to reach the ZOLGENSMA drug so that I can live and breathe comfortably regardless of the device. My treatment in America will take 3 months. My parents and older sister will support and assist me in this process. We need € 2.3 million (Zolgensma cost + medical treatment) to buy this drug. With your support, you can make me reach my dream of life.