Epidermolysis bullosa is a group of rare medical conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma and are painful. Its severity can range from mild to fatal. An estimated 20 per million live births are diagnosed with EB. All of them need life-long care and treatment of wound-infection.
This is a collection to support people who are not so privileged in life as we are. Thousands of children around the world suffer from diseases that are so rare, that medicines for them cost a fortune. I am sure that together we need no government or bureaucracy to help these people. The purpose of this collection is to draw attention to orphan diseases and raise some money for charity. Some of these kids have only twenty or ten or even two years to live, but it's in our power to help them suffer less.
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Epidermolysis bullosa is a group of rare medical conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma and are painful. Its severity can range from mild to fatal. An estimated 20 per million live births are diagnosed with EB. All of them need life-long care and treatment of wound-infection.
This is a collection to support people who are not so privileged in life as we are. Thousands of children around the world suffer from diseases that are so rare, that medicines for them cost a fortune. I am sure that together we need no government or bureaucracy to help these people. The purpose of this collection is to draw attention to orphan diseases and raise some money for charity. Some of these kids have only twenty or ten or even two years to live, but it's in our power to help them suffer less.