Leigh syndrome is an inherited neurometabolic disorder that affects the central nervous system. It occurs in at least 1 of 40,000 live births. Different genetic types of Leigh syndrome have different prognoses, though all are poor. Kids affected by this disease are expected to survive 2-3 years, and in rare cases, to their teenage years.
This is a collection to support people who are not so privileged in life as we are. Thousands of children around the world suffer from diseases that are so rare, that medicines for them cost a fortune. I am sure that together we need no government or bureaucracy to help these people. The purpose of this collection is to draw attention to orphan diseases and raise some money for charity. Some of these kids have only twenty or ten or even two years to live, but it's in our power to help them suffer less.
Leigh
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Leigh
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Leigh syndrome is an inherited neurometabolic disorder that affects the central nervous system. It occurs in at least 1 of 40,000 live births. Different genetic types of Leigh syndrome have different prognoses, though all are poor. Kids affected by this disease are expected to survive 2-3 years, and in rare cases, to their teenage years.
This is a collection to support people who are not so privileged in life as we are. Thousands of children around the world suffer from diseases that are so rare, that medicines for them cost a fortune. I am sure that together we need no government or bureaucracy to help these people. The purpose of this collection is to draw attention to orphan diseases and raise some money for charity. Some of these kids have only twenty or ten or even two years to live, but it's in our power to help them suffer less.